Updates on Victoria Lily Joy van den Broek, born 120705.

Thursday, March 13, 2008


Yesterday's visit to London saw us arriving bang on 11am (I DO so like getting there on time!) but we didnt' see anyone until almost 12. The first thing was to have 4-limb blood-pressures for which Victoria sat beautifully and didn't complain (therefore they got a good and reliable result). Then we had to wait again before the echo. That took quite a long time too - the important bits to look at seem to be particularly hard to get into view - and it was confirmed again that the heart repair was holding up to the pressure. It was the lady registrar who did this echo and she said that it was not certain that surgery wasn't in the offing. The information gathered yesterday (including and ECG) will be discussed with Dr Magee - who wasn't there yesterday. We have another appointment in June.
We were the last people out of the place and headed for the Science museum where we looked at how a safe combination lock works - v. interesting. I had Simon and James with me and it was rather nice to have them and be able to pop into museums to see specific bits of interest.

Wednesday, March 12, 2008


Today we see the cardiologist - we're driving to the station and parking there and getting the train. Being on a yellow-box when we drove up last time cost the same as 10 trips by train- we don't want to risk THAT sort of expense again....

Tuesday, March 11, 2008


On Friday we went to have the eye-test. Victoria had been practicing signing the pictures which are used in the test. With her left eye covered she could see (and signed enthusiastically) almost all of the pictures shown (in various sizes) from across the room. Then with her right eye covered she adjusted her position and evidently struggled to see any but the biggest of the images shown to her. The lady testing thinks it could be because she was losing interest- however, I happen to know that Victoria WANTED to say what the pictures were (she tried one sign after another!!). She has another appointment for June at which the eyes will be tested the other way round.

Victoria's favorite song at the moment is 'head shoulders knees and toes' - though a close second is 'wind the bobbin up'. She likes watching 'get up and go' a DVD with songs and silly things to do (with Dave Benson Phillips). She doesn't get it more than once a week - though she is ever hopeful and has her own sign for asking if she can have a film on (a sort of variation of the 'music' sign).
Just recently she has been a bit difficult in the morning 'education' sessions. This mornign when she got out of bed she just bypassed my room altogether and when she was brought back was keen to escape straight away! I thought, in the circumstances, I ought to concentrate on fun and speech-sounds rather than the reading and matching of names.
On Saturday Victoria enjoyed a visit to Wisley Garden and especially the flowers in the glasshouse.
+ Raising Down Syndrome Awareness -