Victoria

Updates on Victoria Lily Joy van den Broek, born 120705.

Friday, November 30, 2007

catheterisation plans

The first provisional date having been cancelled was a good thing in the light of the fact that Victoria then went on to be knocked out by a cold. Most people in the house have now had, or are cultivating, a cold.
We have a bed for Sunday and we have to be there at 10.30am. On that day Victoria is to have x-rays and other tests in preparation for Monday when it is hoped that she will have the camera threaded up through her artery to identify the nature of the narrowing.
This morning Victoria is unusually inactive and has a fast pulse. I hope it is just a way of her finishing off with her cold and not the start of something which will mean we have to put off the appointment on Sunday....

Monday, November 19, 2007

delay

there was no bed for Victoria today - the next provisional date is the 3rd of December. Victoria didn't mind anyway!

Wednesday, November 14, 2007

Dates

Last week we had an appointment to get Victoria's eyes checked - they're fine. next time, with the help of some pictures which she ought to be able to make the signs for, they can test how far she can see.
We have the date for the cardiac catheterisation but have to wait to hear from the people in charge of booking beds - we expect to go on Monday mng, early.
Before that, on Friday, Victoria has an appointment to ahve her ears tested. I think they are fine but there's not much use thinking about speech therapy if she's not had her hearing tested.
Yesterday I had the pleasure of meeting a delightful young lady, 20 years old, who has down syndrome and has been homeschooled. What an inspiration she is. I wish I'd taken my camera, but I'll not forget her anyway. She plays her part in a busy household. She still needs to learn things and so she continues, with her younger siblings, to learn at her own rate. Along with that she is an invaluable help in the kitchen and the household generally. She likes poetry and she writes. She knows what it is to be insulted and ridiculed, and she deals with it in a very gracious manner, not feeling bitter (as I would) against those who despise her. Of such is the kingdom of heaven....
 
+ Raising Down Syndrome Awareness -