Updates on Victoria Lily Joy van den Broek, born 120705.

Friday, July 29, 2005

News on Thursday the 28th is that Victoria gives us worrying moments (esp. in the middle of the night when she refuses to suck or swallow..) but today she has been a very good girl and has had 3 feeds where she has taken 80mls. She gets about 40mls from me and the rest from formula. I tried again today to see if she would have a go at breastfeeding – she wouldn’t – but at least she didn’t get cross about it.
Victoria is a very uncomplaining little person (and example to us all!) and yesterday when Lucy stripped her and laid her on a towel for the purposes of washing her she didn’t make a murmur – even when she was completely wet! I have a feeling that Victoria knows a good deal more about trusting God than we do…
On Tuesday when we took her to see the cardiac specialist from the Brompton hospital (at his monthly clinic at St Peter’s) we came away with a feeling of gloom. The op. can be done at 3 months and before that we are to expect her condition to deteriorate. It seems (from what I can understand) that her lungs are ‘stiff’ because the vessels around are not yet filled with blood. An op. now would mean that her heart would be seriously strained. Putting off the op means that her lungs will get fluid in them for which she will have medication. The op. can be brought forward at such a time as she shows difficulty with breathing. This is also likely to affect her feeding – she will find it too much like hard work to breathe, suck and swallow. I am not thinking too much about this – except that I shall stay near home (and therefore hospital) - and will continue to work from one feed to the next.
Another bit of very exciting news for which we are deeply thankful is that Lucy has found that she may transfer from Leicester to Guildford. She only now needs to speak to the person at Leicester who is responsible for her and then the process of transfer can begin.
The prospect of Lucy going back to Leicester on Sunday is not a happy one, she has been so immensely helpful. She has been answering the phone and emails. As well as this she has been keeping the dinners under control and keeping the small children out of mischief.
One thought which occurred to me while, on Tuesday, I laid down my dear little baby girl on the changing mat for the Dr. to take some blood for a thyroid test was that the Lord lays us in the way of painful experiences. He is watching with compassion while we struggle and grieve but He allows us to suffer because He is all-wise and knows what is good for us. If only this knowledge were to become a reality in my soul I am sure I would begin to make progress.


  • At 11:26 AM, Blogger HadlowHouse said…

    If only this knowledge were to become a reality in my soul I am sure I would begin to make progress. . .

    I am sure we all know a bit of this, suffering is never easy; may God be with you in your trouble "Jehovah hear thee in the day, when trouble he doth send".


  • At 3:53 PM, Anonymous Anonymous said…

    Dear Tracey
    The knowledge is already there, i am sure. We all have many experiences which are for our good, and i know this one will be for your good too. So many people are praying for you all at this time and we know our Lord is a great and faithful God. He loves Victoria more than you do, don't forget that. The Lord is near to all who call upon Him. Psalm 145:18. Love in Him
    Julie x`

  • At 7:11 PM, Anonymous Anonymous said…

    Tracey, I know about that reality. I also know that the seeds are already in your heart. I also know the battle that you face waiting for the heart knowledge to happen. Hang in there. and know that amidst all of this you are being held in the hands of the almighty even though it may not feel like it. I still check B nightly and still have to hand him over to God on a daily basis. For me it was saying "this is your child Lord do with him what is necessary for your Glory". It is the hardest prayer to pray, and I still get overwhelmed by those really horrible feelings, when his temp goes up to 42 and he's gone weird on me.But I also know that if this is how much I love him then how much more does God love him. I hope that God will really give you His peace and that you would really really know of his calming prescence and amazing peace that he gives.

  • At 2:26 PM, Blogger Sarah said…

    Dear Tracy
    Thank you for the update. We are still praying for little Victoria Lily Joy and will continue to keep you all in our thoughts and prayers. Stay encouraged, you are doing so well and are an example to us all. Give the little dolly a big kiss from all of us. Take care
    Love Sarahxxx


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